Firstly, we are not medical professionals, or experts in any *professional* way, in our dealings with children with complex needs. What we are, is parents of two teenage boys with complex needs who would like to share our experiences of navigating the choppy waters of family life…and surviving (to date!)
Our two boys were diagnosed in Spring 2013 with Asperger’s Syndrome*/ADHD, and ADHD*, respectively. At the time we felt like we had been hit by a bomb; we felt out of our depth, isolated by our children’s behaviours, and in desperate need of help, support and advice, which sadly is not easily found in the UK.
Gradually, over the years, we have found A way – OUR way – through a very difficult period of our lives as a family – and don’t misunderstand me, this journey is nowhere near over!
We have been dogged in seeking help, determined in our search for answers, and unequivocally supportive of each other as we have attempted to do the very best that we can for our children and our family.
There have been moments when we have wanted to turn our backs and give up; and there have been moments when we have unashamedly patted ourselves on our proverbial backs with absolute pride in our achievements as a family, and as individuals.
We have come to this project following the many, many (and yes, MANY) conversations we have had over the years with other parents and carers in similar situations to those we have found ourselves in; often feeling judged, isolated, alone and in need of someone to talk to who understands what it it is like to be here, to be part of THIS story, whatever their own particular story, with their own particular children, with their own complex needs, may be,
This Facebook page is just the start of our project. A website/blog is in progress, as is a podcast, and a book proposal is somewhere in the future….
Join us – if you’d like to, and feel free to share.
Happy reading! xx
*notes 1 – Asperger’s Syndrome is now described as follows in the DSM-5, the latest ‘Diagnostic and Statistical Manual of Mental Disorders’: “Individuals with a well-established DSM-IV diagnoses of autistic disorder, Asperger’s disorder, or pervasive developmental disorder not otherwise specified should be given the diagnosis of autism spectrum disorder”.
*notes 2 – ADHD is the abbreviation of Attention-Deficit/Hyperactivity Disorder as specified by the DSM-5,
*notes 3 – The Diagnostic and Statistical Manual of Mental Disorders, otherwise known as the DSM, is the handbook used by healthcare professionals in the United States and much of the world as the authoritative guide to the diagnosis of mental disorders. The DSM contains descriptions, symptoms, and other criteria for diagnosing mental disorders and is updated every few years to reflect current thinking. The most recent update was in 2013.